It has taken me a few days to complete this post. I haven't wanted to leave Merrick's side since Saturday.
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If you haven't heard Merrick had what they are calling a tonic-clonic seizure on Saturday evening. It lasted for almost 45 minutes. It was the worst 45 minutes of my life.
We were sitting around our apartment and Jonathan was going to play wii while I made dinner. I was in the kitchen starting the oven (which I left on when I was rushed to the ambulance). Merrick was heading to a cabinet he wasn't supposed to get into. Jonathan asked Deklan to grab his brother. This made Merrick very mad. He started screaming and held his breath (this happens a couple of times a day). When Jonathan picked him up he started shaking. I called 911 right away. They were here in a few minutes.
They couldn't stop the seizure so they decided to take him to the ER. Once in the ambulance they kept trying to stop. When he had been seizing for about a half an hour they decided that they needed a medic. So we pulled over and a medic came. They gave him 3 doses of Valium and finally he was calm. Then they started an IV wrapped him in a blanket and handed him back to me.
In the ER we saw several doctors including a neurologist. They are sure that it was caused by the breath holding and that he doesn't have a seizure disorder. Only time will tell.
Deklan was a mess the whole time. He cried so hard. I know how scary it was for me but I can only imagine what he felt. Thankfully some very good friends (Michael and Halle) met us at the hospital and took really good care of Deklan.
So thank you Michael and Halle, Seattle Children's hospital, and the rescue workers who responded. I pray it never happens again.
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2 comments:
Oh Erin--how terrifying! I guess the big question is, how in the world do you teach a child Merrick's age not to hold his breath when he's mad? Which begs the question, how do you keep this from happening again?! I can't imagine how scary that must have been. Thank goodness it appears to have been situational and not neurological. Praying that peace finds its way back to you after your ordeal.
It bring tears to my eyes just to hear that all over again. I was so scared for you, Jonny, Deklan, and most of all for Merrick. I am glad all is ok and it was good to see it for myself yesterday.
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